Related UK organisations

Related UK organisations include:

  • the Bladder and Bowel Community providing information and support for bladder and bowel control related problems for patients, their families, carers and healthcare professionals. They can be contacted on 01926 357220.
  • Bladder Health UK, which offers support and information about related syndromes including interstitial cystitis or painful bladder/bladder pain syndrome as well as bacterial cystitis, overactive bladder and incontinence. Their confidential advice helpline is 0121 702 0820.
  • for sufferers of PCOS or polycystic ovary syndrome, the Verity self-help group
  • the Vulval Health Awareness Campaign (VHAC), which at the time of writing has regrettably had to close its website. However, the work continues, and patients with VIN and/or vulval cancer can still access support via the website of the Association for Lichen Sclerosus and Vulval Health, which is the umbrella organisation for the group. VHAC still works for awareness of vulval cancer and vulval disease in general.