Welcome to the Vulval Pain Society, a UK registered charity supporting vulval pain sufferers.
Our aims are:
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To promote and protect the physical and mental health of sufferers of vulval pain through the provision of support, education and practical advice
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To advance the education of the general public in all areas relating to vulval pain
We offer advice and information on all vulval pain matters. You can read detailed information about vulvodynia, vestibulodynia (previously known as vulval vestibulitis), lichen sclerosus, and other vulval pain conditions. We also have information on sex and vulval pain, pregnancy and vulval pain, and other general good advice.
Supporter Natalie successfully completes half marathon for VPS
A huge 'well done' and 'thank you' to VPS supporter Natalie Pougher, who took part in the Hever Half Marathon at Hever Castle, Kent on Sunday 8 July 2018 in order to raise funds for the VPS, successfully completing the event despite sweltering weather (apparently 31C on the day!).
If you're interested in making a donation, there's still time to do so if you visit Natalie's fundraising page, where you can also find more details about the event.
You can read more about Natalie's personal journey with vulvodynia on her blog.
British Society for the Study of Vulval Disease 2018 Meeting
The BSSVD is a medical specialist society aiming to support the advancement of care and research in vulval disease. The society has over 160 members from various specialties including Gynaecology, Dermatology and Sexual Health. Their annual conference in May 2018 was in Salisbury. In parallel with the society's conference there was a meeting for GPs which was well attended. The members of the BSSVD gave presentations on various skin diseases including lichen sclerosus, lichen planus and vulval pain. Abi Kingston, Consultant Gynaecologist at Salisbury Hospital, was the events organiser.
Read more: British Society for the Study of Vulval Disease 2018 Meeting
UPDATE - University of York study on women's reproductive disorders and human rights
Please note that following an excellent participant response, this study has sufficient data and is now closed. As ever, any further updates or news about the results of the study will be posted here and on our Older studies page.
Many thanks to all who took part in the study.
#ItsNotInYourHead: campaign to raise awareness about provoked vestibulodynia
The Women's Health Research Institute in Vancouver, British Columbia have asked us to pass on news about #ItsNotInYourHead, a campaign which they have just launched to raise awareness about provoked vestibulodynia.
You can watch the campaign's short animated video here, or visit their page on Facebook.
VPS is in The Independent!
The VPS has contributed to an article about vulvodynia appearing in UK newspaper The Independent. You can read the entire article on The Independent's website.
Input needed for the Lichen Sclerosus Priority Setting Partnership
The Lichen Sclerosus Priority Setting Partnership are looking for people to take part in a survey they are running to find out what research questions are important to patients with lichen sclerosus and health professionals who are involved with the condition.
For more information about the survey, download the LSPSP's PDF poster or visit their page on the University of Nottingham website.