Welcome to the Vulval Pain Society, a UK registered charity supporting vulval pain sufferers.
Our aims are:
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To promote and protect the physical and mental health of sufferers of vulval pain through the provision of support, education and practical advice
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To advance the education of the general public in all areas relating to vulval pain
We offer advice and information on all vulval pain matters. You can read detailed information about vulvodynia, vestibulodynia (previously known as vulval vestibulitis), lichen sclerosus, and other vulval pain conditions. We also have information on sex and vulval pain, pregnancy and vulval pain, and other general good advice.
Vulval Pain Society Conference 2020 - a date for your diary
Keep a space in your diary for our 2020 Conference:
WHEN
Saturday 24 October 2020, 9.00am - 4.00pm
WHERE
Friends House
173 - 177 Euston Road
London
NW1 2BJ
- Opposite Euston station
- Within walking distance of King's Cross and St Pancras International stations
Watch this space for further details.
Participants needed for study exploring sleep and chronic pain (University College London, London, UK)
Millions of people are living with a condition which causes chronic or persistent pain, negatively impacting physical and psychological wellbeing. The SCRIP Study led by PhD student Zoe Zambelli at University College London aims to unravel the relationship between sleep and pain for those affected by a painful condition.
A series of studies will be conducted to seek out ways to understand and improve sleep management in individuals with chronic pain. It is hoped this will contribute towards better pain outcomes and enhance overall well-being. This research is being funded by the Economic and Social Research Council.
Participants needed for study exploring the embodied experiences of people living with chronic vulval pain in the Netherlands (University of Amsterdam, Amsterdam, Netherlands)
A researcher at the University of Amsterdam is looking to interview people in the Netherlands with experience of chronic vulval pain as part of her anthropology research project.
The study is open to chronic vulval pain sufferers, whether diagnosed or undiagnosed: anyone who has experience of vulvodynia, vestibulodynia, pain during sex, itching, soreness etc is welcome. The researcher is primarily looking to speak with people living in the Netherlands. Please note that the interviews will be in English.
For further details about the study, please see our Current research page.
Participants needed for study examining shared decision making in chronic pain (University of the West of Scotland, Paisley, Scotland, UK)
PhD student Abbie McGuire is currently recruiting for her questionnaire study and needs individuals who experience chronic pain (exceeding 12 weeks even with treatment). Abbie's work is examining the ways shared decision making may help individuals with chronic pain. Her survey will take 30-40 minutes to complete but does not have to be done in one sitting.
For further details about the study, please see our Current research page.
Participants needed for study looking at the impact of vulval pain conditions on women's sense of gender, health and wellbeing (University College London, London, UK)
A final year undergraduate student from University College London is looking to interview people who support women with vulval pain for an anthropology research project. The study will be looking at vulval pain conditions and how they impact upon women's sense of gender, health and wellbeing.
For further details about the study, please see our Current research page.
Welsh Marches Vulval Pain Support Group - notice of new address
Please note that the Welsh Marches Vulval Pain Support Group, which covers the areas of East Wales, Cheshire, Shropshire and Hereford, now has a new address.
The administrator for the group has asked us to pass on the following information:
'The Welsh Marches Vulval Pain Support Group is now much easier to join - simply go to https://groups.io/g/wmvpsg.
I look forward to accepting your requests to join.'