Welcome to the Vulval Pain Society, a UK registered charity supporting vulval pain sufferers.
Our aims are:
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To promote and protect the physical and mental health of sufferers of vulval pain through the provision of support, education and practical advice
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To advance the education of the general public in all areas relating to vulval pain
We offer advice and information on all vulval pain matters. You can read detailed information about vulvodynia, vestibulodynia (previously known as vulval vestibulitis), lichen sclerosus, and other vulval pain conditions. We also have information on sex and vulval pain, pregnancy and vulval pain, and other general good advice.
Join us for our next Social Media Livestream: 'Pain and the Pelvic Floor: Appropriate Physio Treatments'
Join us for our next Social Media Livestream: 'Pain and the Pelvic Floor: Appropriate Physio Treatments'
on Wednesday 24 February 2021 at 7.00pm GMT.
With Maeve Whelan, Chartered Physiotherapist and Postgraduate Women's Health Physio Trainer
Participants needed for study looking at how people with vulval pain conditions experience online health information and online peer support groups (University of Surrey, UK)
Do you have vulvodynia or vestibulodynia and use online health information or online support groups? If so, then Harriet Farrell-Poulton at the University of Surrey would love to hear from you in connection with her research. Participation involves one online interview of around 60 minutes.
To take part, you should have a diagnosis, including self-diagnosis, of vulvodynia or vestibulodynia, use online health information and/or online support groups and be over 18 years old.
Further details about the study are on our Current research page.
Vulval Pain Society Conference 2020 - change of date to 9 October 2021
Due to coronavirus concerns the date for our conference in October 2020 has now been postponed to 9 October 2021:
WHEN
Saturday 9 October 2021, 9.00am - 4.00pm
WHERE
Friends House
173 - 177 Euston Road
London
NW1 2BJ
- Opposite Euston station
- Within walking distance of King's Cross and St Pancras International stations
Watch this space for further details!
Participants needed for study examining the use of writing to improve body image in adults with vulval skin conditions (University of Sheffield, UK)
Do you have a vulval skin condition that affects how you feel about your body? Dr Kate Adkins at the University of Sheffield is running an online Randomised Controlled Trial to test whether or not a brief online writing intervention could improve body image in adults with a range of conditions that affect the skin, including conditions that affect the vulva.
To take part in this study, you will need to be aged 18 or over and live with a skin condition (e.g. lichen planus, lichen sclerosus, vulval intraepithelial neoplasia (VIN), cysts, herpes or dermatitis/eczema) which negatively affects how you feel about your body.
Full details of the study are given on our Current research page.
Amazon Smile
If you shop at Amazon, you can now raise funds for us by using Amazon Smile and they will make a donation to the Vulval Pain Society. Just follow the link and choose us as your beneficiary (our charity number is 1118118).
You can find Amazon Smile at https://smile.amazon.co.uk/ch/1118118-0