Welcome to the VPS, a UK registered charity.
Our aims are:
To promote and protect the physical and mental health of sufferers of vulval pain through the provision of support, education and practical advice
To advance the education of the general public in all areas relating to vulval pain
We offer advice and information on all vulval pain matters. You can read detailed information about Vulvodynia, Vestibulodynia, Lichen Sclerosus, and other conditions. We also have information on sex, pregnancy, and other good advice. Find out more about us.
VPS joins Just Text Giving
We have recently joined Just Text Giving, which means that we can now receive donations by text.
To make a donation to the Vulval Pain Society, just text DNKT11 to 70070 with the amount you wish to donate, e.g. £1, £2, £3, £4, £5 or £10.
Alternatively, for other ways of making a donation, see Support the VPS.
VPS webinars - past presentation downloads now available
The VPS has put up a new page on this website, VPS Webinars, which we hope will provide everything you need to know about our free VPS Webinars. The page is still under construction, but amongst other things, it will allow you to download past webinar presentations. At present, you can download the slides from Dr Winston de Mello's presentation of 21 May 2013, 'Management of Vulval Pain', plus an audio recording (MP3) of the Q&A session. You can also now watch online Prof Wendy Reid's presentation of 1 May 2013, 'Vulval Pain - Present knowledge', or download the slides, plus we now have the cleaned up audio recording (MP3) of the presentation. Dr David Nunns' presentation of 16 January 2013 will follow as soon as it becomes available.
IMPORTANT! Please be aware that these presentations contain medical photos and images and may therefore not be 'safe for work'.
UPDATE: Coventry University vulvodynia study
Please note that this online study, which examines UK patients' experiences of accessing treatment for unprovoked vulvodynia, is now closed to new participants. However, the online forum remains open for the time being for those who are already participating in the study. Further news and updates on the progress of the research will be posted here as these become available.
Journey through Pudendal Neuralgia
Margaret Stubbs, who suffers from pudendal neuralgia (a form of pelvic nerve pain), has written a book, Journey through Pudendal Neuralgia, about her personal experience of the condition, including the various treatments she has tried. For further details about the book, including where to obtain it, read on...
UPDATE: West Midlands Vulval Pain Support Group
We're very pleased to announce that the West Midlands Vulval Pain Support Group is now well under way. The group held its first meeting in Birmingham, and has decided to hold subsequent meetings there as well. The West Midlands Vulval Pain Support Group has been set up to provide confidential support and advice for women in the West Midlands suffering from vulval pain conditions such as vulvodynia and vestibulodynia.
Personal experiences of vulvodynia
How do women deal with chronic vulval pain in real life? Journalist Sally Turner talked to women with vulvodynia and vestibulodynia to find out about their personal journeys with these conditions. You can read their real life stories on a new page on our website, Personal experiences.