Welcome to the Vulval Pain Society, a UK registered charity supporting vulval pain sufferers.
Our aims are:
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To promote and protect the physical and mental health of sufferers of vulval pain through the provision of support, education and practical advice
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To advance the education of the general public in all areas relating to vulval pain
We offer advice and information on all vulval pain matters. You can read detailed information about vulvodynia, vestibulodynia (previously known as vulval vestibulitis), lichen sclerosus, and other vulval pain conditions. We also have information on sex and vulval pain, pregnancy and vulval pain, and other general good advice.
Participants needed for study exploring the physical and psychological experiences and sexual function of women with vulvodynia (King's College London, London, UK)
Vulvodynia can have a big impact on a person’s life. It can affect the way women think and feel and the activities they do.
King's College London are looking for participants in an online questionnaire-based study whose purpose will be to explore the psychological experience, pain experience and sexual function of women with vulvodynia.
In order to participate in this study you will need to have a diagnosis of vulvodynia by a health professional, be 18 years or older and not be currently pregnant.
Full details of the study are given on our Current research page.
Participants needed for study to develop practitioner guidelines on communication about the psychological aspects of vulvodynia (University of Nottingham, Nottingham, UK)
The University of Nottingham are looking for participants for a study which is aimed at understanding the views of women and practitioners on communicating about the psychological aspects and impact of vulvodynia, and then producing guidelines to support practitioners in this communication.
To participate in the study, you should either be a patient with a diagnosis of vulvodynia, or a practitioner who works with women with vulvodynia, either in the management of the condition or by referring on to specialist services.
For full details of the study, please see our Current research page.
Guardian article on vulvodynia
The VPS has contributed to and features in an article on vulvodynia in UK newspaper The Guardian. The article is included in today's printed edition of the paper (22 August 2019), or you can read it on The Guardian's website.
VPS is in Bella magazine!
We're featured in an article on vulvodynia in next week's print edition (9 July 2019, p42, on sale until 8 July 2019) of the UK women's weekly magazine Bella. The article covers the condition and also includes a personal history from a brave volunteer.
UPDATE - University of the West of England study on men's experiences of their partners' sexual pain
The VPS has had reports that for some people the link to the online survey for this study was not working correctly. We're happy to say that this problem has now been resolved, but we have also included a further direct link to the study website just in case.
The study is still open to new participants, so if you were interested in taking part before but were unable to access the survey, please do try again on our Current research page.
NHS leaflet on coping with vulvodynia
Living with vulvodynia is an NHS leaflet produced by King's College Hospital which discusses the impact of vulvodynia on your daily life and outlines approaches to managing the pain and improving your quality of life, with a particular focus on psychology and the relationship between mind and body.